Olivia Faith Foundation, Inc

 Our Mission~

A non-profit 501(c)3 Organization 
  • Raising global awareness for CDH
  • Providing support to families affected by CDH and other conditions
  • Awarding scholarships to students seeking a career in fetal therapy 
  • Aiding other organizations in research, prevention and treatments.


What is Congenital Diaphragmatic Hernia (CDH)???

  • CDH occurs in the beginning stages of development (about 9-10 weeks gestation) when the diaphragm does not completely close, allowing the abdominal organs to fill the chest cavity inhibiting the growth of the lungs.
  • Occurs: 1 in 2500
  • Affects almost 1,700 babies in the US each year
  • Every 10 minutes a baby is born with CDH (that is 6 every hour)
  • 50% of these babies don't survive
  • CDH is as common as cystic fibrosis and spina bifida, yet there is very little research and even less funding
  • CDH occurs in all races, ethnicity, ages and socio-economical statuses. 

 

 We support several organizations including CHERUBS. We just ask that if you choose to donate to CHERUBS or anyone else, that you please include Olivia Faith's name in honor or memory of her. Thank you.
        In memory of our sweet Olivia Faith who was 
"too beautiful for earth"
                 

 

~About Olivia~

Olivia Faith was diagnosed with CDH at her 20 week ultrasound. While still in the womb she survived a surgery that would give her poorly developing lungs a chance to grow. She was born on October 28, 2011 and had surgery to repair her diaphragm at 1 week old.  After 7 weeks in the NICU, with Mommy and Daddy by her side, she passed into eternal life on December 18th 2011. 





If having trouble viewing this video, please click on the "YouTube" button at the bottom right hand side. It will directly take you to the video. Thanks. 


On July 18, 2012 Senator Jefferson Sessions (R-AL) formally introduced the Congenital Diaphragmatic Hernia Research Bill, co-sponsored by Senator Benjamin Cardin (D-MD)

Track the progress of the bill:

http://www.govtrack.us/congress/bills/112/s3396?temp-new-window-replacement=true



Donations

PayPal account is active. When you donate and would like to specify where your donation is used, please do so in the space provided.

We will also accept any form of goods that we can sell/raffle or donate:

~sell/raffle: i.e. electronics, computers, automobiles and boats
~donate: i.e. baby items such as blankets, clothes, teddy bears, medical equipment, notebooks/journals for parents

Thank you for your donation!!

Olivia Faith Foundation, Inc
PO Box 690053
Vero Beach, Fl 32969

 

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